My Organ Donor – Telling Our Story This is my 143rd attempt at writing about my organ donor. Now, I’ve got a second sentence in here. I think it’s going to happen…… because – I’ve received a letter from his
Take it Easy: Advice From My Sister When my bottom lip sticks out and tears spill, I’ll simply write the word “cry”. In July of 2014 an ultrasound picked up on cancer trying to take over my liver. My mind scattered out
The Performance Trap Sometimes we get all caught up in trying to be what we think we should be or what others think we should be. I call it the Performance Trap. I’m not talking about performing for fun –
Turning Down Sweets: Rude or Smart Liver disease from Nash, fatty, autoimmune, PBC, cirrhosis or Hepatitis C can put us in some sticky situations. I threw away a piece of chocolate S’mores cake this week. After taking one sugary bite,
World Hepatitis C Day: We’ve Come a Long Way Baby Look at us! In the beginning there wasn’t a cure for Hepatitis C. The old Interferon and Ribavirin treatment didn’t even come close, but
Cirrhosis is a Pain in the Neck I’ve been walking around like Gomer Pyle for a long time. It’s gotten worse since the transplant. You know, because of the big tummy scar and all…. So, the one thing that I
Finding Liver Cancer Up until a couple of years ago, the biggest threat to my life had been the Hepatitis C Virus. I got that “Not Detected” and was so excited. I still had cirrhosis scarring, on my liver, and
When You Don’t Look Sick with Hepatitis C: how to Some people actually have the words “I told you I was sick” engraved on their tombstone. That SO would be like me. From the age of 30 on I
Walking is the Best Exercise for Liver Disease For most of the last decade, I couldn’t even pretend that I was an athlete. Okay, with declining liver health, I kept cycling and walking fast trying to boost my energy, but
Spots on Your Liver With cirrhosis comes scans and look-sees at your liver every 6 months. Lately, I’ve been hearing all this talk about spots on the liver. Is it cancer? Are they nodules? What if it’s just a lesion?
Stress Busters for Hepatitis C I have no filter these days. So what I’m feeling kind of blurts out. Maybe it’s PTSD. You can guess the result: most of my time is spent home alone. That works, but sometimes you’ve
Balancing Hepatitis and Health My life has been spinning since being diagnosed with the Hepatitis C Virus. At first, I ran out of the hospital trying to get away from it. Then I spent the next 6 years coming to
Courage and Confidence with Liver Cancer During my battle with liver cancer, I loved reading all of your personal cards, emails, and messages. How could I possibly respond back? (Picture me typing all night.) Instead, I folded strong words into
A Spin Around the Sun Crossing the line into January is a really big deal around here. I’ve had a variety of kooky rituals over the years. Most of them have been about marking the passage of time. Buh bye
Depression during Christmas with Hepatitis C or Liver Disease Christmas is all around us. The nativity, singing of hymns, buying myself a present – all of those traditions bring me comfort and joy. I am celebrating it more than ever
10 Ways that You Cannot Get Hepatitis C I’m throwing it down. I just read an email from a poor woman who’s husband was flipping out because they discovered that she had Hepatitis C. He went on this militant housekeeping
Pre and Post Liver Transplant I peer into the darkness several times every night. Sleep is hard to come by, so I toss and turn. My first thought is that I’m so very glad to be alive. All the years
My Fave Free Health Apps for Liver Disease Today’s smart phones have more technology than the Apollo One Spaceship! Have you thought about using your smartphone to improve your health? The applications (apps) can help you get through the ups
(AASLD) The American Association for the Study of Liver Disease creates info and education to support patients. Doctors and medical staff are invested in helping you liver longer stronger with liver disease.
(Global Liver) Donna Cryer is a dear friend who had a liver transplant while finishing her law degree. Her reach goes out to patients, families, medical providers, pharma and on and she’s global.
(Trio-National) Transplant Recipients is your one stop shop for information for ANY type of transplant candidates, recipients, their families and the families of organ and tissue donors. Lorrinda Gray Davis is the President.
(Trio – Oklahoma) This is Oklahoma’s chapter founded by Lorrinda Gray Davis. I’m the founding VP to our current president Benjamin Babb. For anyone needing support for solid organ, tissue, or eye transplant, we’ve got your back. We’ll truly be your best friend.
(Fatty Liver Foundation) was founded by Wayne Eskeridge to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.
(Sober Liver Survival) founded by Jenn Leigh Jones is everything you need for sobriety, recovery, PTSD, breaking cycles of addiction and victims of personal violence. She’s just getting SLS off the ground and would love to connect with other people battling alcoholism.
(Say Yes to Hope) Suzanne Lindley is a hope dealer to cancer patients. If you need a fri
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