I recently took part in The Little Red Heart 5K: LifeShare OK and it was way way over the top fun. This year, it was an honor to serve on the planning committee under our chairperson, Susannah Hooper from Aiden’s
Humor and Health: I’m Not Funny This entire month was filled with encounters and opportunities to laugh. I’ve failed to post since my blog about positivity due to travel and busyness. I’ll tell you more about that later. Let’s move
A friend on IG gave me a shoutout for #positivity this morning. It reminded me of when my twitter buddies personalized a hashtag of #karensunshine . It wasn’t something I tried to earn or aim for. It’s more like a
We enjoy the cycles of the seasons in our lives. For me, fall brings remembrances of back to school, liver biopsies, cancer treatment, and finding my organ donor. This year, I’m watching the deer feed, waiting for the leaves to
When my liver failed, it took a toll on my daughter. Our whole family healed, but it took deliberate action. Your family can heal too. Then you will have even more to celebrate.
Many people with liver disease are told that they will not get better. My family and I all wondered if I would make it. Can you get better with end stage cirrhosis? My doctor predicted I wouldn’t make it 4
The wait time for a liver transplant is a story of suffering. Recently, one in our community talked about her suffering on CNN just a few days before her death, at age 39. Erika Zak was a wife and mom
So much has changed since my liver failed in 2010. There was a lot of medications for liver disease in the beginning. By eating right , I finally weaned onto lower doses. I went off and on some of them. It was
For those living with liver disease, it can feel as if you’ve tried everything to address the long list of symptoms that come along with this diagnosis. Whether you’re dealing with nausea, chronic pain, fatigue, brain fog, or inflammation, there have likely
That whole thing you hear about feeling like your body let’s you down with liver disease? Yeah…that’s an ugly truth. Here is the truth about liver disease – my story. I had a healthy dose of self-acceptance before my liver
After my liver decompensated, I fixated on the death sentence. However down some back street of my mind, I kept thinking that life couldn’t be over. I was mad, and determined to make it. I didn’t know how that would
You are going to need a lot of folks to support you with the Hepatitis C Virus. Think of them as your People who Stand by Me with Hepatitis C and Liver Disease team. It will include family, friends, medical,
You need knowledge about how your liver works, so you can give it lots of support, and live longer, even with end stage disease. A lot of liver disease is caused from inflammation. Your liver is the target for celiac, Hepatitis, and
What a winter it’s been for many of our friends. Me too. I’ve been fighting sinus problems and still can’t take anything but children’s Benadryl. It’s been this way for years. With Hepatitis C, I was afraid to take anything,
Your story of liver disease is unique, and your way of coping with it is too. You may have had a shocking diagnosis from Hep C or to could have come on slowly if you have NASH, fatty, or autoimmune illness.
I can’t write about my organ donor the way I write about everything else. As a transplant recipient, there simply aren’t enough words in my vocabulary or heart. My dear donor, that beautiful boy who’s pictures I have memorized in
I’ve been battling cavities a lot. Some of it was from Hep C, some may have been medicine or treatment, liver cancer, or the Tace and Ablation. I feel like diuretics and even diet or hepatic encephalopathy make it worse.
Can You Exercise Safely with Liver Cirrhosis When my liver failed with Hepatitis C, my doctor made me quit exercises. No weights, no cycling, no running. I had to prove that I would be super careful not to cause another varices
(AASLD) The American Association for the Study of Liver Disease creates info and education to support patients. Doctors and medical staff are invested in helping you liver longer stronger with liver disease.
(Global Liver) Donna Cryer is a dear friend who had a liver transplant while finishing her law degree. Her reach goes out to patients, families, medical providers, pharma and on and she’s global.
(Trio-National) Transplant Recipients is your one stop shop for information for ANY type of transplant candidates, recipients, their families and the families of organ and tissue donors. Lorrinda Gray Davis is the President.
(Trio – Oklahoma) This is Oklahoma’s chapter founded by Lorrinda Gray Davis. I’m the founding VP to our current president Benjamin Babb. For anyone needing support for solid organ, tissue, or eye transplant, we’ve got your back. We’ll truly be your best friend.
(Fatty Liver Foundation) was founded by Wayne Eskeridge to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.
(Sober Liver Survival) founded by Jenn Leigh Jones is everything you need for sobriety, recovery, PTSD, breaking cycles of addiction and victims of personal violence. She’s just getting SLS off the ground and would love to connect with other people battling alcoholism.
(Say Yes to Hope) Suzanne Lindley is a hope dealer to cancer patients. If you need a fri
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