Pre and Post Liver Transplant I peer into the darkness several times every night. Sleep is hard to come by, so I toss and turn. My first thought is that I’m so very glad to be alive. All the years
My Fave Free Health Apps for Liver Disease Today’s smart phones have more technology than the Apollo One Spaceship! Have you thought about using your smartphone to improve your health? The applications (apps) can help you get through the ups
Feelings About Dying with Hepatitis C and Cancer [1 Video] Comfortably Numb Video by Pink Floyd click link to open a new window and listen while you read. One of my favorite classic rock songs is Comfortably Numb by Pink
Please excuse any typos or upside down pics. 🙂 I’m still working on transplant recovery. I don’t want to appear to make light of a the term “nervous breakdown”. There is not an official diagnosis, but it generally describes an
I Am My Own Personal Trainer for Liver Health What I really need to do is to hire a professional. But – that’s way out of my price range – for now… so I guess I’ll have to do. I
What to Expect after a Liver Transplant This is an email to a Best Friend who is waiting on their liver transplant. I thought you might like to read about what to expect after a liver transplant. As always, pardon any
I am positively sure that every person who hears that it’s time to get listed for a liver transplant takes some time to freak out. My doctors and team gave me a lot of information and tons of paperwork but it
Writing a Thank You Letter to Donor Family Writing a thank you letter to donor family was on my mind, even while I was still in the hospital, weak but, getting stronger. After my transplant, I thought of them constantly. The
Going Back to Bed after Surgery After the surgery, my transplant coordinators, friends, and family all conspired to make me rest. Then they got me all jacked up on steroids which made it totally impossible for me to sit
Coming Home After My Liver Transplant This blog and subsequent ones will undoubtably be a hot mess. Given the batch of meds, steroids, and the anesthesia hangover – I promise nothing in regard to editing or coherency. Nothing except the truth
Post Liver Transplant Protein and Healing Happy Earth Day to all of my Best Friends! I am filled with joy at the thought of sharing this lush planet with you all! It seems appropriate to give thanks for all
HAPPY ANNIVERSARY KAREN!!! One year ago today Karen got her transplant!! Hello today is 11/2/15, Karen continues to improve from her transplant and I am trying to help as best I can. I had to have back surgery after
Hangover with Cirrhosis after Ablation This is another one of those blogs that might not make a lot of sense. Howeva, when I experience something and write about it, so many of you have gone through the same thing. We
Ethanol Alcohol Ablation for HCC I get these hunches. Call it intuition, inkling, or whatever you want. The tumor was growing again. For several weeks my snooze alarm was getting tapped more frequently. Not even Matt Bellamy motivated me to
Waiting Room Etiquette There is no other time in your life when waiting seems so long as when you’re sick. It doesn’t matter if you’re sitting in a chair at the doctor’s office or waiting for a procedure – it’s
Sleep is kind of like a thought eraser that swipes the day clean. But I frequently wake up in the middle of the night and remember the tumor. One night last August I awoke with the image of big clamps all around my chest cavity. Eyes wide open now, I saw myself lying on a table surrounded by doctors and nurses, my face as white as the fish I had seen floating belly up on the pond last year. I could see my head arching back with a tube tunneling down my throat that clicked and whished while forcing air into my lungs. I blinked hard and then stared at my chest as my breasts moved up and down. I wondered what it would be like to wake up in ICU with that machine on and my hands tied down. Shaking my head with an audible moan, I flung back the covers, and jumped out of bed like the house was on fire.
My heels drummed a hollow beat on the wood floor as I fairly flew to the kitchen. I stood in the dark. I don’t want a liver transplant. The thought of someone dying to keep me alive is more than I can bear. Of course there are a lot of other things that I don’t want. I don’t want to clean the branches up from the last storm. I don’t want to pay taxes or shave my legs. I don’t want cancer.
Oil Pulling for Liver Detox and Health There is something about home remedies that we all love. Truth be told, a lot of modern science came from “folk medicine”. Today’s aspirin is simply a chemist’s version of the bark on
Fermented Cabbage for Stomach Varices and Liver Health There is a jar of rotting cabbage sitting in my little back porch. If guests were to see the pale mixture, they might assume that a mad scientist had taken up residence
(AASLD) The American Association for the Study of Liver Disease creates info and education to support patients. Doctors and medical staff are invested in helping you liver longer stronger with liver disease.
(Global Liver) Donna Cryer is a dear friend who had a liver transplant while finishing her law degree. Her reach goes out to patients, families, medical providers, pharma and on and she’s global.
(Trio-National) Transplant Recipients is your one stop shop for information for ANY type of transplant candidates, recipients, their families and the families of organ and tissue donors. Lorrinda Gray Davis is the President.
(Trio – Oklahoma) This is Oklahoma’s chapter founded by Lorrinda Gray Davis. I’m the founding VP to our current president Benjamin Babb. For anyone needing support for solid organ, tissue, or eye transplant, we’ve got your back. We’ll truly be your best friend.
(Fatty Liver Foundation) was founded by Wayne Eskeridge to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.
(Sober Liver Survival) founded by Jenn Leigh Jones is everything you need for sobriety, recovery, PTSD, breaking cycles of addiction and victims of personal violence. She’s just getting SLS off the ground and would love to connect with other people battling alcoholism.
(Say Yes to Hope) Suzanne Lindley is a hope dealer to cancer patients. If you need a fri
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