April is Donate Life Awareness Month Full Heart: Honoring Life, Legacy, and the Gift of a Second ChanceThe Gift of Every Morning Every morning when I open my eyes, I feel it—that fragile, beautiful thread of life that connects me
Hope is not a single, clear emotion. It’s not a bright, polished stone we keep in our pockets or a banner we wave on the good days. Hope is a spectrum of color. I’ve come to believe it is a
There are some blogs on here that talk about my gratitude for my daughter becoming my caregiver. Here are some tips with love from a patient’s heart to yours.If you are helping a loved one with hepatitis encephalopathy, it’s a very lonely place. It’s still the most cringe and painful parts of my diagnosis with end stage liver disease. It was an uphill battle through liver cancer and transplant. It’s a helpless place for a patient. We’re loony tunes most of the time. Except it’s not funny to our caregivers. It’s not funny to us either, but we are SO out of it that we are just sitting around as happy little hepatic encephalopathy patients.
As daylight saving time begins, we welcome longer hours of sunlight—a perfect opportunity to be outside, move, enjoy life, and be active. However, for those of us living with liver disease, our energy may be low, and it can be
As we step into a new year, it’s a perfect time to set intentions and map out goals that guide our journey toward growth, happiness, and fulfillment. This year, my goals revolve around three overarching themes: Being, Doing, and Relating.
7 Ways to Reset and Recharge Before the Year Ends
The holiday season is one of the most joyful times of the year, but it can also be one of the most stressful. Between shopping for gifts, attending social events, and preparing endless meals, it’s easy to feel overwhelmed. My dear friend Katie has great ideas and is helping you think ahead and plan for Mindful Merrymaking: Stress-Free and Healthy Christmas Tips.
If you are looking for your MELD Score: Liver Cancer and other exception points, you’ve come to the right place. I ended up getting the extra points for liver cancer. If you have a situation where there are Extra Circumstances,
I didn’t even know what to title this blog. Here I am nearly 10 years after my HCC diagnosis, still alive, but dealing with hip and lower back pain that prevents me from ever cycling or running again. Listen, I
What are Normal Liver Lab Values? So many times, you get your lab values delivered in your hospital portal and have no idea how to understand it. By all means, talk to your provider about any concerns. Then, read on
Fight, flight or freeze response to addition triggers is our basic response to stress. We will all go toward one of those when we get triggered. Think of trigger as representing danger. We were given these as part of our
The Fibrosure and Firbroscan can detect liver damage. i had the needle biopsy and many doctors still consider it the gold standard. Read more to see the pros and cons of all and go to your doctor with an idea of what your choices are.
Your liver is one of the most important organs in your body. When mine got sick, I made some changes . It is the largest organ and can weigh over 3 pounds in adults. After my diagnosis with Hepatitis C,
I heard the nurse outside the door. She was telling the physicians assistant that I looked pregnant. They ended up shipping me off to the hospital for an MRI. I was still lying on the MRI table when they handed
I wasn’t sure about the details of what a MELD score for liver transplant meant until my doctor gave me one. It was right after my first draining of the yellow fluid called paracentesis. A lot of new words were
This is a guest blog by a fellow Hepatitis C patient. She’s a miracle, and I knew that her story of being born with Hepatitis C would give you encouragement. I wanted to share my story of having a liver
When we are talking about how to manage pain, it’s important to know how to tell difference in muscle, bone, and nerve pain. I should have known better, after being a work out addict for my whole life, but nope.
(AASLD) The American Association for the Study of Liver Disease creates info and education to support patients. Doctors and medical staff are invested in helping you liver longer stronger with liver disease.
(Global Liver) Donna Cryer is a dear friend who had a liver transplant while finishing her law degree. Her reach goes out to patients, families, medical providers, pharma and on and she’s global.
(Trio-National) Transplant Recipients is your one stop shop for information for ANY type of transplant candidates, recipients, their families and the families of organ and tissue donors. Lorrinda Gray Davis is the President.
(Trio – Oklahoma) This is Oklahoma’s chapter founded by Lorrinda Gray Davis. I’m the founding VP to our current president Benjamin Babb. For anyone needing support for solid organ, tissue, or eye transplant, we’ve got your back. We’ll truly be your best friend.
(Fatty Liver Foundation) was founded by Wayne Eskeridge to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.
(Sober Liver Survival) founded by Jenn Leigh Jones is everything you need for sobriety, recovery, PTSD, breaking cycles of addiction and victims of personal violence. She’s just getting SLS off the ground and would love to connect with other people battling alcoholism.
(Say Yes to Hope) Suzanne Lindley is a hope dealer to cancer patients. If you need a fri
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