Arm a Plan for Life with Hepatitis C and Cirrhosis

Arm a Plan for Life with Hepatitis C and Cirrhosis

I have been thinking about setting goals and making plans. I told you that I had a little lesson plan revamp for my life. The diagnosis of Hepatitis C and Cirrhosis brought about a total collapse of my entire life. It became a giant sinkhole has swallowed up the life that I had been living. Now that I have beat the Hepatitis C Virus, I am still dealing with the aftermath. It is time to Arm a plan for life with  Hepatitis C and Cirrhosis. This plan also includes the cancer now as well.dream goal hepatitis ihelpc

You know that I am all about positive thinking. The life that we lead while we are going through Hepatitis C treatment, living with liver diseases like Nash, fatty liver, Cirrhosis, or autoimmune problems goes so far beyond positive thinking.

I mean we have to go really far beyond positive thinking. 

ARMED and Ready – I am formulating a plan of how to look into my future. It is great to dream, but we need to have a course of action in order to make our dreams come true. I think a good plan needs to be tested to see if it is even possible. I use the acronym ARM when writing a plan. Then I can ask some questions and  see if the plan is worth my time.

A is for Achievable – Identify what will be achieved -What is the purpose or objective of the plan?

R is for Realistic – What actions or behaviors can I use to make it real? Will I really do it?  What will really work to accomplish the goal?

M is for Measureable – Design a strategy to see if objectives worked.  What was really learned?

I am starting with my thinking. It has been scattered for a few years now. You can look at my journals and see just how messy my thoughts have been. Hepatic Encephalopathy has reared it’s ugly head, but it will not beat me. I am really putting myself out there showing you my personal stuff. But I have gotten to know many of you well enough that I feel like you get it. And if you don’t? Then I cannot worry about that. My experience with illness has taught me that if I must take care of myself.

Our support system may be great, but no one else is living in our mind or body.

I know that most of us living with the effects of Hepatititis C and Cirrhosis are dealing with some messy mental stuff. We can still build a meaningful and beautiful life out of the health problems we are facing.

Here is how I ARMed my very 1st plan of having more peace in my life.

Is it an Achievable Goal?    Can I have more peace of mind? I believe that peace is possible.  Yes. I can achieve that.

Is it a Realistic Goal? – What activities would it require me to do?  Spend more time listening to myself. I will do some quiet reflection. Yes. It is realistic.  

How will I Measure my Goal? – I can evaluate my progress every night when before I go to bed. Then I can give myself a grade on a scale of 1=10. Yes. It is measurable.

Getting more peace of mind can be hard. If it were easy, then the whole world would be chillaxing all the time. A good way to start is by thinking about what you are thinking about. We all have access to our thought life. Nobody else can read our thoughts. That is probably a good thing most of the time!

When I feel uptight about a situation, a big knot forms in my stomach. Not so good when you have active varices. My thoughts may start to race from one thing to the next. 

My goal is to stop and listen to my thoughts when they race around.

1. I think it will help to ask myself a question or two. What am I really afraid of? Is there even one peaceful thought that that I can focus on?

2. I can take a few minutes to meditate or pray.

3. I can journal and write out favorite quotes, scriptures, or just free thought brainstorming.

A little candle in the corner can light up an entire room.

A small peaceful thought can change your entire day if you meditate on it. In other words: choose a favorite thought, scripture, prayer, or word and focus on it.

When my daughter was young and got mouthy or cranky with me, I invited her to take a time out. Not as a punishment, but just to distract her from whatever was keeping her stirred up. I am going to invite myself to take a time out. During this time, I will read something positive like an uplifting blog, book, or verse, and do some honest writing or journaling.

journal hepatitis c ihelpc Ah. The journal.  We tend to see this as too much work, or too personal. We have all kinds of excuses NOT to write.

Before you men throw this totally out, wait! When my dad came out of his hepatic coma with alcoholic cirrhosis, I gave him a journal. He quit drinking and ended up filling several of those notebooks throughout the years. They are some of my most cherished possessions. They helped save my life when I was diagnosed with HCV.

Journalin Tip: Hands off! We may be afraid of someone reading it. Keep it hidden or keep it with you at all times. Set a boundary and tell everyone that it is none of their business! You have simply GOT to have a place where you can go to look at your personal thoughts. Many of mine were so messy that no one could read them anyway.

It’s ugly in there. When we are sick especially, our thoughts can be dark. We do not even want to see them. This kind of honesty is brutal. Maybe it is painful to write or read your own thoughts. One thing I do is to give myself permission to rip the pages out and throw it away when I am finished writing. I usually don’t do that, but when I do hate my own disorganized thoughts, tearing them up in little bitty pieces or lighting a match to them feels good.

worry hep c thinking
I wrote this before treatment: “Just ONE day.. I will think about something else.”

It will require me to change my habits. Sometimes we get used to our own thoughts of despair using our mind as a playground. It is really tough to put a stop to them when they are swinging or whirling around at a fast speed. I have had to force myself to be more aware. I have learned to sit and listen to myself. Only then can I interrupt my thought patterns. When I write down the negative thoughts, my habit is to write down positive thoughts also. It has become a easier for me with time.

One of the reasons that I have written so many blogs in the last year is because I needed a focus for my thoughts.

This little website is proof for you and for me – It IS possible to set a goal. I have ARMed my goal and made it work for me in many areas. Best friends, I might have gone stark raving mad if not for setting that goal. You may not start a blog, but you can always send me your thoughts on paper. It may be just what someone else, including me, needs to hear.

We have made sure that listening to our thoughts and writing them down is Achievable.  We know that it is Realistic. All we need is pencil and paper. We will be able to Measure it every night as we read through our own pages of scribbledy notes.

Now I am looking at the area of being peaceful in Spirit, Mind, and Body. I think we can all see if we were honest about our pattern of thinking, it is less than peaceful a lot of the time. We can recognize our ability to direct our thoughts toward peace.

This process of ARMing a goal has been helpful to me for me over the last few years while dealing with the Hepatitis C and Cirrhosis diagnosis. It now includes Liver cancer and a possible transplant. I can honestly say that it works. I’m counting on it more than ever now!  I have to because the effects of the disease are still with me.

But I do move on. And I want YOU to move on with me. I want  you to ARM a plan for today. For next week. Arm a plan for your future!

You may want to borrow my plan of peaceful thinking. We are in this together. We are in it to have a victorious life.

Every goal or plan starts with a single thought. xo Karen:)

pics via pathwaystowork.edu,

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4 thoughts on “Arm a Plan for Life with Hepatitis C and Cirrhosis”

  1. Good thoughts. I have been with Hep-C for a very long time. Probably got in in the 60’s or 70’s. The cirrhosis appeared 10 years ago. No response to the first treatment 5 years ago and no response to Victrelis last year. I am on the list for the new drug due out in December. I have watched all but 4 of my fellow bandmates pass away in the last 10 years. Over 27 of them. all from Hep or complications from Hep. Very sad. I have no idea what keeps me as viral as I am. Depression and a major neck and lower spine problem, is my biggest problem. I need surgery very bad, but the MD’s are leary of doing anything because of bleeding. I am 67 and will be 68 in Feb of next year. If I can’t clear the virus, the chance of a transplant is slim, in the States. ObamaCare has pretty much said, that the quality of life and cost involved isn’t worth the cost. I differ with that opinion as I have 4 friends that had transplants and 2 of them are going on to their 10th year, post op. You have a good thing going on, here. Hope I can be of help.

    1. Thanks for the compliment. I can tell it was sincere. You already have helped me. Long day at work. Still pushing for the dream for me and for you too.

      See, no one can put a value on a human life. You have something unique to offer that no one else can. Yes. At 67 years young you are in your prime. I also have friends who are moving up on the transplant list. Is there another doctor maybe?

      I’m so sorry that you lost some of your bandmates. I’m sure you have a lot of good memories to treasure. I am happy for you that you have survived…. More memories to be made for you my friend.

      Keep pushing for the dream. Every day. I’m beside you. I got up early to get quiet and offer thanks while looking for some peace of mind. I’ll be up again tomorrow…
      Peace to YOU bf, xo Karen:)

  2. Hi Karen,

    I can’t imagine having to deal with something like this. As I may have mentioned in an earlier comment my Dad had cancer 42 of the years I had him in my life. I know what some of the outlets that he used was volunteering so that he could help others who were going through the same things. I think it just helped talking to someone who has dealt with it then a doctor telling you what to do who has never been through it before.

    Writing is a great outlet and I’m glad you have your journal and this blog.

    Thank you for sharing your journey with us because I know that’s it’s helping a lot of people.

    ~Adrienne

    1. Adrienne,
      You rock my world! It is everything to me to “talk” with others on this website. Your dad was on the right track by giving back from his own place of illness.

      We learn so much about things we never dreamed of knowing! And to help someone else in that process helps strong bonds to form.

      That works in every area though, right? Look at how you are helping me as a newbie blogger!

      Thanks a million!
      Karen:)

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